About SCCF

The Sickle Cell Cure Foundation, Inc. (SCCF) is a nonprofit corporation registered in the State of Oklahoma. Its 501(C) (3) status has been approved by the Internal Revenue Service of the United States as of February 12, 2007. Thus, all donations to the Foundation are tax-deductible. The date of SCCF’s incorporation was July 28, 2006.

SCCF Purpose

Sickle Cell Disease (SCD) affects more people in the world than any other genetic disease. Globally, almost one-half million babies die from SCD each year. We have discovered a treatment that promises permanent relief from the suffering, pain and premature death caused by SCD. We have devised a strong global plan for delivering this treatment […]

Global Mission

Sickle cell disease (SCD) is a global problem. As the most common genetic disease in the world, SCD touches the lives of millions and affects many more. People of at least five racial groups and numerous ethnic origins have inherited the sickle gene. SCD is correctly classified as a “tropical disease”, since it is most […]


HbF (fetal hemoglobin) suppresses the expression of sickle cell disease. In addition, a recent literature review by the imminent Dr. David Weatherall suggests that HbF protects infants from malaria during the first year of life,until HbF levels decline to modest levels through a normal developmental transition as quoted below: In vitro studies have shown that […]

Accomplishments in 2013

The SCCF and EpimedX, LLC together developed relationships with additional partners. The international company that manufactures the chemical used in our treatment has provided over $300,000. to further our research. In mid year, Analytical Edge Laboratories, also located in the University of Oklahoma Health Science Center Research Park (formerly Presbyterian Health Foundation Research Park) agreed […]

Conference: Toward Transformative Therapies for Sickle Cell Disease

The New York Academy of Sciences is hosting a conference on transformative new therapies for sickle cell disease. Four sessions will be presented on October 24, 2017. Session 1: The Patient Perspective and Patient Reported OutcomesSession 2: Vascular Pathology of SCDSession 3: Hemoglobin ReprogrammingSession 4: Novel Therapeutic Approaches Registration options include in-person attendance … [Read More...]

Legacy bequest

The Sickle Cell Cure Foundation (SCCF) has been honored by being named as the beneficiary of a large legacy bequest. We have received documentation for an African American therapist living on the West Coast of the U.S. (and wishes to remain anonymous) who designated the Foundation for this end-of-life gift. We at the Foundation are very grateful for this honor that supports and encourages our … [Read More...]

Our Research

Accomplishments in 2013

The SCCF and EpimedX, LLC together developed relationships with additional partners. The international company that manufactures … [Read More...]

A day in the life…

The day begins with muted anticipation.  Once each week, veterinarians examine carefully the health of each of the study baboons.   These examinations … [Read More...]

More Posts from Our Research

Living with SCD

How Sickle-Cell Families Can Choose a Health Care Plan

The implementation of the Affordable Care Act (ACA) in the United States has presented families suffering from sickle-cell disease with a bewildering … [Read More...]

Effects of the Afforable Care Act for Sickle-cell Families

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World Sickle Cell Day

June 19 was designated as World Sickle Cell day by the 63rd session of United Nations in 2008.

Origins of Sickle Cell

Increasing fetal hemoglobin in people with homozygous sickle cell alleviates all symptoms of SCD. The Google map shows four independent genetic origins, or haplotypes, of SCD in different regions (ellipses) and the subsequent migrations of populations (white arrows). The solid white arrow is to signify the forced migration of Western Africa peoples as slaves to […]


In the United States, SCD affects primarily people of African descent. But this pattern of prevalence is changing, with increasing numbers with SCD being found among Hispanics, Native Americans and Caucasians. SCD affects a large percentage of people in Central America as well as significant numbers in the Carribean and in South American countries such […]

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