http://sicklecellcurefoundation.org/living-with-sickle-cell-disease/living-with-sickle-cell-disease-scd a nonprofit corporation working to cure sickle cell disease Tue, 06 Mar 2012 18:41:02 +0000 hourly 1 http://wordpress.org/?v=3.3.2 http://sicklecellcurefoundation.org/living-with-sickle-cell-disease/living-with-sickle-cell-disease-scd/comment-page-1#comment-459 Sam Poaches Jr Tue, 06 Mar 2012 17:35:11 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=59#comment-459 Bill, if what you say is true. Why is this information not available to all who are living with this disease? I have read this article and what is being said about the life expectancy for SCD is false. I have SCD and I am 56 years old. I know of those with this disease who have lived way into their 60's and above. I also know that some with this disease who have lived to see 15 years of life. It is my opinion that information about treating SCD is not being shared. You state "We treated many patients in the gulf and Nigeria as well." nIf this is true. Why is this information not available to every doctor who treat patients living with SCD? My reading what you have to say makes me angry. Due to the fact that you have information that may help someone and you are keeping this information to yourself and not helping all who are living with this painful disease. Bill, if what you say is true. Why is this information not available to all who are living with this disease? I have read this article and what is being said about the life expectancy for SCD is false. I have SCD and I am 56 years old. I know of those with this disease who have lived way into their 60′s and above. I also know that some with this disease who have lived to see 15 years of life. It is my opinion that information about treating SCD is not being shared. You state “We treated many patients in the gulf and Nigeria as well.” nIf this is true. Why is this information not available to every doctor who treat patients living with SCD? My reading what you have to say makes me angry. Due to the fact that you have information that may help someone and you are keeping this information to yourself and not helping all who are living with this painful disease.

]]> http://sicklecellcurefoundation.org/living-with-sickle-cell-disease/living-with-sickle-cell-disease-scd/comment-page-1#comment-453 Kisha Wed, 15 Feb 2012 22:53:02 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=59#comment-453 I believe there should be more information about the cure, prevention and management of the disease. I hope one day there will either be very few cases of the disease or none at all. I believe there should be more information about the cure, prevention and management of the disease. I hope one day there will either be very few cases of the disease or none at all.

]]> http://sicklecellcurefoundation.org/living-with-sickle-cell-disease/living-with-sickle-cell-disease-scd/comment-page-1#comment-406 Bill Wed, 09 Nov 2011 05:51:46 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=59#comment-406 We do have treatments for sickle cell and it is natural extracts mixed with special type of honey.Even it is genetic but the patient can live in a normal life .We treated many patients in the gulf region and Nigeria as well. We do have treatments for sickle cell and it is natural extracts mixed with special type of honey.Even it is genetic but the patient can live in a normal life .We treated many patients in the gulf region and Nigeria as well.

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