Comments on: Our Research http://sicklecellcurefoundation.org/2009/07/our-research/ a nonprofit corporation working to cure sickle cell disease Fri, 14 May 2010 09:25:44 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: Robert H. Broyles, PhD http://sicklecellcurefoundation.org/2009/07/our-research/comment-page-1/#comment-10 Robert H. Broyles, PhD Mon, 07 Sep 2009 04:59:46 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=64#comment-10 Reply to Sharice (Sept 3): Dear Sharice, I hope that your daughter has good medical care, at least to the extent possible for SCD. We do not know exactly how far away we are from making our treatment generally available. We must first find a financial partner who will help us conduct clinical trials, and we do not know how long it will take to obtain the necessary funds. We hope to start clinical trials in a year from now, but that is optimistic that we will find the necessary partners soon. Please urge your friends to donate through PayPal (very secure) on this website by clicking on the gold Donate button, and donate yourself if you can afford to do that. Yes, this treatment will have to be given several times a year; and it will have to be taken for the rest of the patient's life. But "the rest of the patient's life" will then become a normal life span; and the pain should become a thing of the past. The treatments will be very inexpensive, about 10% of what it now costs for inferior, partially effective treatment. And there should be no side effects. All the best, Robert H. Broyles, Ph.D. President, SCCF Reply to Sharice (Sept 3):

Dear Sharice,
I hope that your daughter has good medical care, at least to the extent possible for SCD.
We do not know exactly how far away we are from making our treatment generally available. We must first find a financial partner who will help us conduct clinical trials, and we do not know how long it will take to obtain the necessary funds. We hope to start clinical trials in a year from now, but that is optimistic that we will find the necessary partners soon. Please urge your friends to donate through PayPal (very secure) on this website by clicking on the gold Donate button, and donate yourself if you can afford to do that.

Yes, this treatment will have to be given several times a year; and it will have to be taken for the rest of the patient’s life. But “the rest of the patient’s life” will then become a normal life span; and the pain should become a thing of the past. The treatments will be very inexpensive, about 10% of what it now costs for inferior, partially effective treatment. And there should be no side effects.

All the best,

Robert H. Broyles, Ph.D.
President, SCCF

]]> By: Sharice http://sicklecellcurefoundation.org/2009/07/our-research/comment-page-1/#comment-6 Sharice Thu, 03 Sep 2009 18:29:43 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=64#comment-6 Hi Dr. Broyles, I have a daughter with Sickle Cell Disease SS. I would like to know more about this breakthrough and how far the general population is away from being able to recieve Gene Regulation Therapy. You mentioned this would have to occur a few times per year...would this have to be an on-going therapy for the remainder of ones life? I'd like to be contacted concerning this breakthrough. Thank you! Hi Dr. Broyles,

I have a daughter with Sickle Cell Disease SS. I would like to know more about this breakthrough and how far the general population is away from being able to recieve Gene Regulation Therapy. You mentioned this would have to occur a few times per year…would this have to be an on-going therapy for the remainder of ones life? I’d like to be contacted concerning this breakthrough.

Thank you!

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