A cure for sickle cell disease from our own bodies…
We are very proud to announce major progress in the search for a cure for sickle cell disease (SCD), the first genetic disease to be understood and a major disease that kills an estimated half-million people world-wide each year. As high as one in every four black persons in certain parts of Africa carries the sickle cell gene. In the United States the incidence is 1 in 12 for African Americans, and approximately 78,000 have SCD. Dr. Robert H. Broyles, a medical school professor and researcher in Oklahoma City, has discovered a protein that is grown in our own bodies that will silence the sickle cell gene and activate a normal gene in its place. Unlike current treatments that are only partially effective or treat the damage caused by SCD, this cure is very specific for the cause, easy to deliver, and beneficial to the whole body. We are working to get this treatment through safety trials and into the clinics where it will be available to all who have sickle cell disease. Our vision is a global one: our goal is to get this cure to each of the millions of people world-wide who have SCD and/or Beta-Thalassemia.
My one-year-old daughter was diagnosed with Sickle Cell Disease just weeks after her birth, so I have been trying to learn as much as possible about the disease. Just hearing about your clinical trial has a healing effect because it gives me hope. Please keep up the good work. Your dedication to a cure is appreciated beyond any words I can speak!
Dear Harper,
Thank you very much for the encouragement. I wish the very best for you andyour one-year-old daughter.
Robert H. Broyles, PhD
SCCF President/Lead Scientist
I too am glad for a cure for this painful disease, watching my son go through this is not an easy task.
We live in Barbados in the Caribbean and i too ope we can benefit from this breakthrough.
May God continue to give you the wisdom you seek.
Dewar Melissia,
Thank you for your comment. We hope to start clinical trials in mid-2012. I wish your son and you the very best.
Sincerely,
Robert H. Broyles, PhD
SCCF President/Lead Scientist
I have my two sons 9 and 11years old infected. When are we expecting this miracle?
When are we expecting this miracle?
Dear Rowland Ogundu,
Our pre-cinical trials of our treatment in mice are progressing well, and we anticipate starting clinical trials in mid-2012. Meanwhile, I hope you two sons have access to good medical care.
All the best,
Robert H. Broyles, PhD
SCCF President/Lead Scientist
this is good new . hope it’s real. cos we live a one day at atime kind of life. 2moro is not garantied. it’s God’s grace and love that keep most of us alive. i dont know what sin we a paying for. the pains is hell.apart from ur immediate familly and one two or close friends nobody wants to bring u close. they a scared.No job, cos they fill we are not strong enough for the job.no girl friend,cos they re scared of being a widow so early. the life of sickler worst than than of a person living with HIV. May God bless u for this good new.it keeps hope alive.
Dear Ehimhen Martins,
Thank you for writing and sharing your comment on this website. We hope that our treatment will make all of this much better. Pre-clinical trials in mice are going well, and we hope to start clinical trials in mid-2012.
Meanwhile, I wish you all the best.
Robert H. Broyles, PhD
SCCF President/Lead Scientist
Dear Robert, I want to seize this opportunity to thank you for initiative in finding a better cure to sick cell anaemia, may God strenghten you to do more, i am a sickler, and i have lived with it for 23yrs and i have passed through though times health wise, please i want to be notified when the clinical cure is out…..Dave Nigeria
Dear Dave,
I really appreciate your thanks and well wishes. And I send my best to you. We will keep you posted about our progress toward clinical trilas, which we now anticipate starting in mid-2012.
All the best,
Robert H. Broyles, PhD
SCCF President/Lead Scientist
You will be helping millions of people who are suffering from this Disease if a cure is finally found.
I have a 3yr 8months son with this disease so far, the Lord has been on our side he has not manifested any symptom, just recently he had serious cold and the Doctor said it is Pnuemonia, after the medication there is serious improvement in his state of health. I had thought of going for bone marrow transplant but there seems to be alot of side affects as I was made to understand through articles and newsletter. We have prayed for a permanent cure and we are optimist that God will use you and your organisation to actualise this. Please keep us posted when the medications are available for use. Thank you
Dear Chuks,
Thank you for your description of your son’s battle with sickle cell. We are hoping to start some clinical trials of our treatment in mid-2012. If our treatment is as safe as our pre-clinical tests indicate so far, it will be much easier and much less expensive to deliver than a bone marrow transplant. I wish you the very best for your son.
Robert H. Broyles, PhD
SCCF President/Lead Scientist
ooh how i wish a cure comes as fast as posible, sickle cell is the most lifelong painful diesease. May God asist humanity for a cure for this by birth tragedy.
Thank you, Chibuenyim.
My duaghter has sickle cell i hope she gets cured
We share your hope and are working toward that goal. All the best to you and your daughter.
Thanks for sedpinng time on the computer (writing) so others don’t have to.
MY NAME IS SADDIQ I AM 10 YEARS,OID A KNOWN SCD PATIENT FROM NIGERIA.WISH U ALL THE BEST IN YOUR HARD WORK TO CURE THIS PAIN FULL DISEASE.STAY BLESED.
Thank you, Saddiq.
I am the editor of an online health magazine in Orlando, HealthOrlando.com. I am
researching for a friend any natural cures or foods that can be included in a diet that will
promote better health for people who have sickle cell . Please let me know if there are
any dietary supplements or foods that help.
Dear Ken,
Weare working on a food supplement that will help, but it is not ready yet. Other than that, just a healthy diet is best.
I can recommend a natural dietary supplement that works. This product can be obtained from Nigeria
The name of this product is Ciklavit. It works and I know your friend will benefit from it. Good luck.
The herbal formulation “thiocynate” helps
Dr. Broyler
I have lost 3 aunts and uncles to SSD. My younger brother has SSD and was just released from the hospital yesterday. To be completely honest I must admit that I have staved off forming a bond with him out of fear of one day losing him. A couple of days ago we spoke at length and developed an unbreakable bond. It’s so difficult because out of habit I want to tell him how successful he will be and how he can have a happy and healthy family but I hesitate because of what we’ve experienced. He speaks often of ending it all or wishing he were never born. It’s quite difficult to deal with. If there is a cure available I am willing to invest it all to bring him a long pain free life.
Dear Nik,
I wish you and your brother the very best. We are working as fast as we can. Tell your brother that there is hope and a possible cure on the way.
Take care…
Dear Sir,
My wife is suffering from SCD for last 7 years though it has been hidden since her childhood.
Requesting you all to help me to cure this disease at the earliest. Pls revert back what are the information required from me ?
Regards,
SABAPATHI,
SALEM, TAMILNADU,
INDIA
We are all wishing you the very best. God bless you.
Dear Dr. Broyles,
Will your human clinical trials be particular to different Sickle Cell Disease (SCD) patients in different regions of the world? An example is the difference in test parameters and therapy rendered to Africans from those from the US or Afro caribbean. My reason is the possibility of variance in the “pathology” and presentations of the disease due to the part of the world where the patient lives. Hence, there may polymorphism in patients’ response to one remedy, which is based on patients in the US.
Is my theory relevant?
Donation Appeal to Friends and Families of SCD Patients
SCD is known as one of the “Orphan” diseases in the world. This is because it does have the attention of the world community as other diseases, like AIDES, Cancers, etc. Let us take ownership of the cause to finding a cure for this disease by making regular and affordable donations to the effort.
I thank Bill and Melinda Gates Foundation for making donations for this research. In addition, I thank Dr. Broyles and his team for their work in this area; and … for taking time out of your busy schedule to answer questions of parents, who see salvation and hope in your work.
Thank you for the work you are doing. Im really hoping for a cure. I am an SCD patient though i havent had any crises in over 15 yrs, just for the coloring of my eyes and my low BMI. pls others, dont allow anyone discourage you, just do the do’s and avoid the dont’s, im sure a cure is underway…
I feel for their pain and may God almighty help you with d braekthrough. But for now. Pls people you can enjoy life now before this expectant breakthrough by this simple herbal remedy: unripe pawpaw. My son has been using it for like 9 months now, 1 tablespoon 3 times daily after food. d unripe pawpaw is used like 2hr after any authodox medecine and he his also taken folic acid everyday. Reason: the fermented unripe pawpaw water soak for 48hrs reverse cell sickling by 80% , while folic acid produced more red blood cell. When ever i took my son to d hospital, doctors are always amazed. They wonder what kind of sickle cell patient he is bcos his blood level is always normal. Though i didnt tell them about d unripe pawpaw. I only took him to the hospital occationally for check up and they always certify him ok. My email: mayorprint2@yahoo.com. NOTE: Editor Pls. Publish it, even if u remove my email i don’t care. I know what my son go through b 4 finding this. Pls let people know its my own small help. Thanks
Can you make this site an interactive site for ss? it will help alot pending when your cure will come out. We need a cure that will be effective, affordable and worldwide especially to africans and nigeria(more than 1 million). i hope we are still alive to get the cure because is getting more terrible with me. -32 years nigerian.
-i hope there is really a cure:))…my daughter is three mths old && has sickle cell Iwe found out about two weeks after she was bon.i dont wanna see/watch my princess go though all the pain…it already gurts to thibk about what she may have to go though with…i just want my bby to b a normal little grl…Please Find a Cure!!!
Dr Broyler,
God bless u guys for the good work. pls keep it up. I really do hope we get better news sooner than mid 2012…many are suffering
i’ll love to receive updates and progress reports mailed to my e-mail. thanks a lot
May God bless u and give u more wisdom, i have a daughter that is ss,though they bsaid hers is sc,she is 4yrs now atimes she will be having cool,and after treatmemt she will be normal.
This web site is a source of hope for me and the whole family,we will contunially praying for u and ur team. we believe in u and ur team that ur test will be successfuly and will be waitn to hear the good news. thks and God bless……….
hello, my names are mulumbi musonda am a proud father of twins (boys) aged 5 years from zambia africa..
am now seeing hope having read your progress towards the cure for this heartless diesease.
wish you wel in your research.
thank you
its a amazin to hear about your progress,pls i will like to know how far you have gone in this research, you are a life saver just hearing about your research,….i am from nigeria and i will like to help people here,my friend is a chronic sickler and i cant just stand the pains he goes through,God will help you my mobile number is 07060479764…..i will like to be your ambassador in nigeria….keep up the good work
Dear Dr.Broyles;
It is very encouraging to hear that a possible cure for this painful disease is on the way, I have suffered with SCD all my life, I have been hospitalized on numerous occasions with very painful crisis and almost died in 2008 from massive organs failures, thankfully the good Lord kept me around. I am 51 years old, you can say I have beaten the odds of life expectancy for SCD pateints which I read is 40 yrs.
Will you be doing clinical trials in Wash, DC area in mid 2012? If so, can I volunteer or at least keep me informed of the progress of the trials.
Thank you doctor and keep up the good work, the world of SCD sufferers are waiting and praying for this miracle.
God bless.
Ricardo
Hello
Dear Dr. Broyles,
Will your human clinical trials be particular to different Sickle Cell Disease (SCD) patients in different regions of the world? For example, where there be differences in test parameters and therapy rendered to African patients from those from the US, or Afro Caribbean. My reasons are based on the possibility of variance in the “pathology” and presentations of the disease due to the part of the world, where the patient lives. Hence, there may be polymorphism in the response of patients from different parts of the world from patients in the US.
Is my theory relevant?
Donation Appeal to Friends and Families of SCD Patients
SCD is known as one of the “Orphan” diseases in the world. This is because it does have the attention of the world community as other diseases, like AIDS, Cancer, etc. Let us take ownership of the cause to finding a cure for this disease by making regular and affordable donations to the effort.
I thank Bill and Melinda Gates Foundation for making donations for this research. In addition, I thank Dr. Broyles and his team for their work in this area; and … for taking time out of your busy schedule to answer questions of parents, who see salvation and hope in your work.
Hi Great people, please if you ever find cure of this deadly disease, you will have saved me from tears i cry every time I think of that disease. Please may the Almighty Lord guide you as you progress in your research for the cure. Please keep us posted on the progress because we really love our children who are great victims and suffering ignorantly.
May God be with you .it really makes us have hopr Dr Broyle
Dear Dr. Broyler,
I am very pleased for this great news of hope to ending SCD. This shows that God is raising men to clean up this dreaded genetic affliction. God bless you. Please do inform us once the trials is available in Nigeria. We have loved ones with SCD. We are expectant!
Remain Blessed.
Osim
God who gave u the wisdom to towards getting a cure for this painful disease wil perfect it. When wil the cure get to Nigeria if u succeed in mid 2012. Can the indegent ones afford the cost. Thanks
Thanks so much for effort to bring hope sufferers please keep me posted on the latest development. I am currently dating a girl i wish to get married to we are both carriers for dis there is hope for the future because i love her so much and losing her is like hell i would wait till then thanks once for the hope. Pls how do i contact you
Thanks 4 d goodwork
Reading through this piece gave me great joy and hope .I have a 13year old girl that has lived through a lot of pain for as long as she was born .I pray that the Good LORD bless your enterprise and may you have the desired break through for the benefits of all sicklers and humanity in general.Wishing you success
I Have It But I Stay In Georgia
pls i need ur advise doctor its still me saddiq,my perents are suggesting a bone marrow transplant do you think i should wait for ur drug or go for the transplant.
I’ve been very curious about the mouse thing. Hope will work in humans.
Whatever you’re doing, is encouraging, will pray for the breakthrough. There was a guy in Angola Africa who did wonders, with roots and leaves for sickle cell patients. He was from Malange, an Angola plateau area, and was related to Sambo one of the greatest native doctors who cured tuberculosis back in the forties, but never revealed the secret. We just can’t wait to see your experiments in humans. In God we trust. that everything goes well.
Loid’Ana
I hope that God bless you and find the cure. I am 13 year old and i need the cure. Because the pains are too painful.
My Uncle has Sickle cell. I pray he’ll live long
im sooo happy for this new development &i so much pray it works out for millions of Nigerians who die due to this disease.i also want to plead for the affordability.may God help you.PLS KEEP ME UPDATED ONCE IT’S AVAILABLE
I just want to say “well done” to your team for your efforts at finding a lasting cure. I do not have the trait/disease as i’m AA, but my wife was born with the sickle cell disease and has been through trying times. We lost our first pregnancy at 34 weeks last year cos she had a crisis. Right now, she’s 25 weeks pregnant, but we are very hopeful that everything will turn out fine.
Dr Robert, my heart is really with you on this and i wish you and your team great success.
I am 27 turning 28 with Beta Thal, this is the first I have seen of this website and feel very much encouraged. I live in VA and will happily help with the clinical trails coming this yr (2012). Please keep in touch!
Pls keep me posted about d cure pls. I suffer from it too
Dear Mr Broyles,
I am from Brasil and I have a 4years old girl who was born with this disease. May God bless you to find a cure for all who suffer with this disease. I would like to be posted about all news.
Congratulations for your success so far.
Is ur research for cure or for treatment.
I was born with sickle cell, i almost died cause of sickle cell, ya’ll just dont know how much i hate it. i couldnt play sports, fight, or anything “contact wise” but i do anyways. me and my sister wouldnt mind that so-call cure. all im saying is you gotta prove it to me