Comments on: Radio Interview with Dr. Broyles http://sicklecellcurefoundation.org/2009/08/radio-interview-with-dr-broyles/ a nonprofit corporation working to cure sickle cell disease Sun, 15 Jan 2012 02:14:42 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Azia http://sicklecellcurefoundation.org/2009/08/radio-interview-with-dr-broyles/comment-page-1/#comment-386 Azia Tue, 27 Sep 2011 10:45:47 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=159#comment-386 My prebolm was a wall until I read this, then I smashed it. My prebolm was a wall until I read this, then I smashed it.

]]> By: Ash http://sicklecellcurefoundation.org/2009/08/radio-interview-with-dr-broyles/comment-page-1/#comment-379 Ash Sat, 17 Sep 2011 00:12:07 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=159#comment-379 I ment an "herb" I ment an “herb”

]]> By: Ash http://sicklecellcurefoundation.org/2009/08/radio-interview-with-dr-broyles/comment-page-1/#comment-378 Ash Sat, 17 Sep 2011 00:11:39 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=159#comment-378 Hello, You should try Osetoking....an herd developed in china to cure your Avascular Necrosis. Ive heard many success storys and its helped me as well Hello,

You should try Osetoking….an herd developed in china to cure your Avascular Necrosis.
Ive heard many success storys and its helped me as well

]]> By: broylesr http://sicklecellcurefoundation.org/2009/08/radio-interview-with-dr-broyles/comment-page-1/#comment-101 broylesr Fri, 01 Jan 2010 18:09:33 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=159#comment-101 Dear Myko Davis, Thank you for your very good question. Our cure will be administered in 3 or 4 rounds each year for the life of the patient, which should then be a normal life with a normal life span. But the treatment is simple to administer, will be painless, and should cause no side effects. All the best, Robert H. Broyles, PhD President, SCCF Dear Myko Davis,
Thank you for your very good question. Our cure will be administered in 3 or 4 rounds each year for the life of the patient, which should then be a normal life with a normal life span. But the treatment is simple to administer, will be painless, and should cause no side effects.
All the best,
Robert H. Broyles, PhD
President, SCCF

]]> By: Myko Davis http://sicklecellcurefoundation.org/2009/08/radio-interview-with-dr-broyles/comment-page-1/#comment-96 Myko Davis Sun, 27 Dec 2009 02:13:17 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=159#comment-96 Will this cure be a one time thing or will it be something that has to be administered often? Will this cure be a one time thing or will it be something that has to be administered often?

]]> By: broylesr http://sicklecellcurefoundation.org/2009/08/radio-interview-with-dr-broyles/comment-page-1/#comment-70 broylesr Thu, 26 Nov 2009 03:18:26 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=159#comment-70 Dear Johnson Tosin, Yes, the finding is true and the data supporting it are strong. The next step is trials in animals, to test for safety and effectiveness of the treatment. Our application for animal trials was very recently approved by our local IACUC (Institutional Animal Care and Use Committee). As soon as the money is raised for these trials and the trials are completed, we hope to begin human clinical trials - which will require even more money. All of this must be done before the treatment can be widely distributed. I hope that you will spread the word in Nigeria. We need donations from many, many people all over the world to accomplish the task of testing this cure. Donations can be made with a credit card by clicking on the gold "Donate" button on the website, or by mailing a check to The Sickle Cell Cure Foundation, 601 NW 13th Street, Oklahoma City, OK 73103, U.S.A. All donors receive a personal letter of thanks, a receipt, and recognition on our website. Thank you very much for your interest and help! Sincerely, Robert H. Broyles, Ph.D. President, SCCF Dear Johnson Tosin,
Yes, the finding is true and the data supporting it are strong. The next step is trials in animals, to test for safety and effectiveness of the treatment. Our application for animal trials was very recently approved by our local IACUC (Institutional Animal Care and Use Committee). As soon as the money is raised for these trials and the trials are completed, we hope to begin human clinical trials – which will require even more money. All of this must be done before the treatment can be widely distributed.
I hope that you will spread the word in Nigeria. We need donations from many, many people all over the world to accomplish the task of testing this cure. Donations can be made with a credit card by clicking on the gold “Donate” button on the website, or by mailing a check to The Sickle Cell Cure Foundation, 601 NW 13th Street, Oklahoma City, OK 73103, U.S.A. All donors receive a personal letter of thanks, a receipt, and recognition on our website.
Thank you very much for your interest and help!
Sincerely,
Robert H. Broyles, Ph.D.
President, SCCF

]]> By: broylesr http://sicklecellcurefoundation.org/2009/08/radio-interview-with-dr-broyles/comment-page-1/#comment-69 broylesr Thu, 26 Nov 2009 03:03:38 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=159#comment-69 Dear Alondra, I am so sorry to hear of the trouble you have had. Our treatment for SCD will stop the anemia and the sickling, so that they do not occur anymore. Any of the effects of sickle cell that the body can reverse are likely to go away, as well. Unforftunately, the damage already done by avascular necrosis that caused all those bone replacements cannot be reversed. We were recently approved to start animal trials. If those go well, we hope that human clinical trials will follow. All these things must be done before a treatment becomes widely available. And all these steps require funding which we are seeking but have not yet found. But, yes, there is hope.... All the best, Robert H. Broyles, Ph.D. President, SCCF Dear Alondra,
I am so sorry to hear of the trouble you have had. Our treatment for SCD will stop the anemia and the sickling, so that they do not occur anymore. Any of the effects of sickle cell that the body can reverse are likely to go away, as well. Unforftunately, the damage already done by avascular necrosis that caused all those bone replacements cannot be reversed. We were recently approved to start animal trials. If those go well, we hope that human clinical trials will follow. All these things must be done before a treatment becomes widely available. And all these steps require funding which we are seeking but have not yet found. But, yes, there is hope….
All the best,
Robert H. Broyles, Ph.D.
President, SCCF

]]> By: alondra http://sicklecellcurefoundation.org/2009/08/radio-interview-with-dr-broyles/comment-page-1/#comment-68 alondra Thu, 19 Nov 2009 00:31:40 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=159#comment-68 Dear Dr.Broyle, I was diagnosed at the age of 5 with sickle-beta-thal (+) in july of 2002 myself & my three sister was exsposed to pavora b19 virus which claimed the life of my baby sister (july12,2002)at the age of 21 & almost took my life,I was told that I was saved by them figuring out what happened to her! As a result of the virus along w/me being on life support from july 11th-21st(the day of her funeral) I've developed Avascular Necrosis which has caused me to have both shoulders (total shoulder) replaced also my femur bones,bottom pelvic bones,bone density in my lower back,are deteriating! Yes a whole lot going on! My question is Will this procedure cure the Avascular Necrosis as well! I'm also in process of publishing my biography about my life and my goal in doing so is too bring awareness of this disease b/c a lot of people are ignorant when it comes to it as well as financial help for cures! I'm only 34yrs old & since that fatal day in July 2002 my life has been turned upside down,its been one surgery after the other! I was sick a lot as. Child & it kinda slowed down & before that happen in July 2002 I maybe had 4 episodes that may have lasted 2days in 8yrs! Its been down hill SINCE! There are atleast 4days out of the week that I can barely move!! Its awful & I wouldn't wish this disease on my worst enemy!!! Thank you for even caring about bringing relief to us! Its so hard maintaining any part of life w/this disease! IT AFFECTS & EFFECTS EVERY PART OF OUR LIVES!! Dear Dr.Broyle, I was diagnosed at the age of 5 with sickle-beta-thal (+) in july of 2002 myself & my three sister was exsposed to pavora b19 virus which claimed the life of my baby sister (july12,2002)at the age of 21 & almost took my life,I was told that I was saved by them figuring out what happened to her! As a result of the virus along w/me being on life support from july 11th-21st(the day of her funeral) I’ve developed Avascular Necrosis which has caused me to have both shoulders (total shoulder) replaced also my femur bones,bottom pelvic bones,bone density in my lower back,are deteriating! Yes a whole lot going on! My question is Will this procedure cure the Avascular Necrosis as well! I’m also in process of publishing my biography about my life and my goal in doing so is too bring awareness of this disease b/c a lot of people are ignorant when it comes to it as well as financial help for cures! I’m only 34yrs old & since that fatal day in July 2002 my life has been turned upside down,its been one surgery after the other! I was sick a lot as. Child & it kinda slowed down & before that happen in July 2002 I maybe had 4 episodes that may have lasted 2days in 8yrs! Its been down hill SINCE! There are atleast 4days out of the week that I can barely move!! Its awful & I wouldn’t wish this disease on my worst enemy!!! Thank you for even caring about bringing relief to us! Its so hard maintaining any part of life w/this disease! IT AFFECTS & EFFECTS EVERY PART OF OUR LIVES!!

]]> By: Johnson Tosin http://sicklecellcurefoundation.org/2009/08/radio-interview-with-dr-broyles/comment-page-1/#comment-67 Johnson Tosin Wed, 18 Nov 2009 11:46:49 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=159#comment-67 Hi broyles, Could this be true? i just stumbled at your web page and i got this imformation. I read just a very little on how gene regulation therapy really works on your page, and i hope this helps everyone. Its november now, and i just want to know how far your clinical trials have gone. Am writing your from Lagos nigeria. I really feel deep need for the awareness here in Africa too. Pls lets know the status. Thanks Johnson Tosin Hi broyles,
Could this be true? i just stumbled at your web page and i got this imformation. I read just a very little on how gene regulation therapy really works on your page, and i hope this helps everyone.
Its november now, and i just want to know how far your clinical trials have gone. Am writing your from Lagos nigeria. I really feel deep need for the awareness here in Africa too.
Pls lets know the status.
Thanks

Johnson Tosin

]]> By: Angela http://sicklecellcurefoundation.org/2009/08/radio-interview-with-dr-broyles/comment-page-1/#comment-45 Angela Sat, 26 Sep 2009 02:05:38 +0000 http://sicklecellcurefoundation.ecoonamoly.com/?p=159#comment-45 Dr. Broyles, Thank you for the feedback on my previous post. I'm very happy to know that the cure will be a universal cure. I'd like to do as much as I can to help bring awareness to the possibility of a cure for this disease. Do you have information that I can send to people that may want to contribute financially? I realize that the month of September is National Sickle Cell Awareness Month. If people make donations after the month of September, will that be too late in helping the foundation reach its financial goal in funding the clinical trials? Thank you, Angela Dr. Broyles,

Thank you for the feedback on my previous post. I’m very happy to know that the cure will be a universal cure. I’d like to do as much as I can to help bring awareness to the possibility of a cure for this disease. Do you have information that I can send to people that may want to contribute financially? I realize that the month of September is National Sickle Cell Awareness Month. If people make donations after the month of September, will that be too late in helping the foundation reach its financial goal in funding the clinical trials?

Thank you,
Angela

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