Comments on: Peer Review & Validations of SCCF’s Discovery – Our Credentials

By: wale olowode

wale olowode — Tue, 06 Dec 2011 18:16:01 +0000

Apart from funding, in what other ways can i help your research work. Presently, i am involved on collecting useful information that could serve as cure for sickle cell anaemia. Can you make the drug
available for clinical trials on sickle cell carriers? i am a Nigerian.

By: kay

kay — Tue, 01 Nov 2011 15:26:12 +0000

Hi, i am have SCD fortunately though enough for me i havent had crises in over 15yrs… im hoping though a cure comes along cos im underweight and i have done everything to add to my weight which is not working, then my eyes are very colored most of the times. Please how far have you gone in this trials? God bless you

By: emma orem

emma orem — Sat, 22 Oct 2011 09:39:14 +0000

Hi, dgs
i have 3 kids all sickle sell ,i lost one 2month ago at age of 8yrs,remaining 2, one 4yrs and the other one, 1and 3months, please sir, will it be any hope for us to live happily with kids in feture with your discovery,sir if yes when this will be,and how will reach people in lower areas.

By: Angelia

Angelia — Fri, 14 Oct 2011 23:30:13 +0000

Dear Robert,
I have a son with Sickle cell disease (14mons) and another son(4yrs) who is going to be the donor bone marrow transplant in April 2012. I was surfing throughout your website because I’ll be beginning (Lord’s willing) my doctoral study this January. My translational project is going to be on sickle cell disease. I am interested in your curative methodology on sickle cell anemia. My prospectus is regarding individuals lack of knowledge regarding curative measures for sickle cell disease. I postulate that if patients and families are given the education regarding curative measures and not just palliative treatment options then I believe more patients/families/communities will be more proactive in participating in curative therapy. I would like to have any information/links to access your research. My goal is to educate the community on the devastating effect of sickle cell disease and to provide hope through information regarding curative treatments for sickle cell.

By: Kola Adekoya

Kola Adekoya — Mon, 22 Aug 2011 04:28:24 +0000

Hello Dr. Broyles, You mentioned that you will “start clinical trials in humans with sickle cell within this year (2011).” How far has the trials gotten?; what are the clinical trial results for SCD “SS”?; What is your opinion for the future of the cure?

By: Kola Adekoya

Kola Adekoya — Mon, 22 Aug 2011 04:07:26 +0000

If this remedy works, it will be God sent miracle for thousands of minorities afflicted by this “Ophan” disease.
We have Bill and Melinda Gates to thank for their sponsorship of research into this area of oversight. Moreover, one wants to thank Dr. Broyles for his insight and resilience at finding remedy for this serious systemic disease.

By: broylesr

broylesr — Tue, 12 Jul 2011 17:26:06 +0000

Dear Mariam Shah,
Our treatment will benefit beta-thalassemia by increasing fetal hemoglobin (HbF) to 30% or more in each red blood cell, which will alleviate the globin chain imbalance and increase the lifespan of the red blood cells. Thus, the anemia will go away or be less severe and all the other complications due to damaged red blood cells shoud go away or be much decreased.
Robert H. Broyles, PhD
SCCF President/Lead Scientist

By: m

Fri, 08 Apr 2011 07:06:05 +0000

dear robert,
how will this benefit beta thalassemia patients?
M

By: broylesr

broylesr — Mon, 03 Jan 2011 00:39:02 +0000

Dera Arjun,
Thank you for your message. We are a research foundation; and this is the first year in our 4 1/2-year existance that our research has received significant funding, thanks to the Bill & Melinda Gates Foundation. So, I have been spending most of my time in the lab. Our animal trials in mice got underway November 1, 2010. We hope to start clinical trials in humans with sickle cell within this year (2011). Thank you for your interest and I hope that we can get our treatments available to you as soon as possible.
Sincerely,
Robert H. Broyles, PhD
SCCF President

By: Arjun

Arjun — Sat, 31 Jul 2010 10:42:03 +0000

Hi dgs,
i have a very close friend of mine with the Sickle Cell Disease. She is undergoing regular treatment but gets a crisis about once in a couple of months, which is very disturbing for all of us.
It has been 8 months since this last article ull have posted, can i please know what is the current status of your Gene Regulation Therapy or any other cures to sickle cell tht ull have been researching?
Also, by when r these expected to be available to the public?
I pray and hope for a breakthrough.