How Sickle-Cell Families Can Choose a Health Care Plan

The implementation of the Affordable Care Act (ACA) in the United States has presented families suffering from sickle-cell disease with a bewildering array of health-insurance options. Previously, these families often had been limited in the health insurance coverage available to them. This is the third of three articles describing how the ACA affects families with […]

Effects of the Afforable Care Act for Sickle-cell Families

The Affordable Health Care Act and Sickle Cell Families

In the United States, the Affordable Care Act (ACA) has dramatically improved the health insurance options for families with sickle-cell disease. This is the first of three articles describing how the ACA affects families with sickle cell disease. Previously, numerous barriers prevented families with sickle cell disease from obtaining insurance coverage for the necessary treatments. […]

Oklahoma’s 2nd Annual Sickle Cell Event

The Supporters of Families with Sickle Cell Disease are organizing the second annual Oklahoma sickle-cell disease awareness event. The event includes an opportunity to run, jog, or walk along a 5-kilometer path in Tulsa as well as a community bazaar. The event will be held on Saturday morning, September 9, 2015 at 914 N. Greenwood […]

Ethical Treatment of Children with Sickle Cell Disease

According to the World Health Organization (WHO), 200,000 African infants are born annually with sickle cell. Nigeria accounts for about three quarters of these babies and there are about 100,000 infant sickle cell deaths in Nigeria each year. Afiniki Akanet was born in Kaduna, Nigeria. Although her parents and siblings are not affected by the […]

1st Annual Sickle-cell 5K Event

Jog, Run, or Walk for a Cure! sponsored by: The SCCF encourages participation in this Oklahoma City awareness and fund raiser event on Saturday, August 2, 2014. The event is sponsored by the non-profit Supporters of Families with Sickle Cell Disease and they welcome sufferers, families, health-care providers, and supporters. Help may consist of sponsorship, […]

Black Star Girl

As a tribute to the struggles of two parents in caring for their daughter and son; we include the following excerpt from the memoir Black Star Girl, by Marva Woods Stith. Please visit her web site, ( where you can learn more about her story. Seventeen months after we welcomed our first child, my loving […]

Living with Sickle Cell Disease (SCD)

For thousands of Americans, living with sickle cell disease means a lifetime of painful episodes, blood transfusions and frequent trips to the hospital. These treatments can often cause complications that are just as bad or worse than the effects of the disease itself. Sickle cell disease (SCD) is an inherited genetic disorder that affects red […]

J.R. Perry III and his son Jameel

Jameel was born in 1999, and within 2 hours of his birth his father J.R. knew that his son would suffer from sickle cell disease. J.R. has devoted the rest of his life to raising awareness of SCD and the need for a cure. A musician, song-writer, promoter, and talk show host, J.R. Perry has […]

National Sickle Cell Month

The Sickle Cell Cure Foundation, Inc. (SCCF) has made significant progress in recent months, including a U.S. patent issued 14 April 2009, and further laboratory discoveries showing that less DREPAC is needed than previously believed to reverse sickle cell! To keep this progress going, we need your help! It is our goal to have clinical […]