Conference: Toward Transformative Therapies for Sickle Cell Disease

The New York Academy of Sciences is hosting a conference on transformative new therapies for sickle cell disease. Four sessions will be presented on October 24, 2017. Session 1: The Patient Perspective and Patient Reported OutcomesSession 2: Vascular Pathology of SCDSession 3: Hemoglobin ReprogrammingSession 4: Novel Therapeutic Approaches Registration options include in-person attendance (travel information) […]

Legacy bequest

The Sickle Cell Cure Foundation (SCCF) has been honored by being named as the beneficiary of a large legacy bequest. We have received documentation for an African American therapist living on the West Coast of the U.S. (and wishes to remain anonymous) who designated the Foundation for this end-of-life gift. We at the Foundation are […]

September Sickle Cell Awareness Event Scheduled

Plan ahead to participate in the Fall 2016 Sickle Cell Awareness event and SAVE MONEY!  The 5K Walk, Run, or Jog for a Cure annual event will be in Oklahoma City on Saturday, September 17, 2016.  If you preregister now, youth can participate for $15 and adults (18-years of age and older) for $20.  If […]

How Sickle-Cell Families Can Choose a Health Care Plan

The implementation of the Affordable Care Act (ACA) in the United States has presented families suffering from sickle-cell disease with a bewildering array of health-insurance options. Previously, these families often had been limited in the health insurance coverage available to them. This is the third of three articles describing how the ACA affects families with […]

Effects of the Afforable Care Act for Sickle-cell Families

The Affordable Health Care Act and Sickle Cell Families

In the United States, the Affordable Care Act (ACA) has dramatically improved the health insurance options for families with sickle-cell disease. This is the first of three articles describing how the ACA affects families with sickle cell disease. Previously, numerous barriers prevented families with sickle cell disease from obtaining insurance coverage for the necessary treatments. […]

Oklahoma’s 2nd Annual Sickle Cell Event

The Supporters of Families with Sickle Cell Disease are organizing the second annual Oklahoma sickle-cell disease awareness event. The event includes an opportunity to run, jog, or walk along a 5-kilometer path in Tulsa as well as a community bazaar. The event will be held on Saturday morning, September 9, 2015 at 914 N. Greenwood […]

World Sickle Cell Awareness Day

The theme for World Sickle Cell Awareness Day, June 19, 2015 For Sickle Cell to stop being ignored you must STOP YOUR SILENCE and SHARE YOUR TRUTH Various activities are planned around the World.

Accomplishments in 2014

The highly productive collaboration between the Sickle Cell Cure Foundation and the EpimedX Limited Liability Company (LLC) continued. Many of the accomplishments listed here were achieved through the efforts and funding of EpimedX. Grants On December 1, the National Institutes of Health, National Heart, Lung and Blood Institute (NHLBI) awarded a Small Business Innovative Research […]

Dr. Robert Floyd, SCCF co-founder, Life in Brief