J.R. Perry III and his son Jameel

JR Perry

JR Perry

jameelkeyboard

Jameel on the keyboard

Jameel was born in 1999, and within 2 hours of his birth his father J.R. knew that his son would suffer from sickle cell disease. J.R. has devoted the rest of his life to raising awareness of SCD and the need for a cure. A musician, song-writer, promoter, and talk show host, J.R. Perry has planned a nation-wide music tour for 23 cities to raise money for a cure. J.R.’s effort is called “Cure Every Cell” and forms a perfect complement to the Sickle Cell Cure Foundation’s goals.

Comments

  1. i am 2oyrs old, a nigeria and i reside in lagos. im also with disease but wen u see me i don’t actually luk it. i fink d problem here in africa is those with d disease are not able 2 purchase d dneccessary drugs cos dey re quite expensive, if constant monitorin and attention is given there will be lesser population dat die everyday. i take ma drugs constantly and i can count d no of tyms i go to the hospital yearly.

    • Dear Deborah,
      Our treatment should be inexpensive – something that anyone can afford to buy. We are trying to get it to Nigeria for our first clinical trials, which we estimate to be about two or three years from now. Please try to stay as healthy as you can. I wish you the best!

      Robert H. Broyles, Ph.D.
      President, SCCF

  2. PLS CAN I HAVE DEBORAHS ADD. I NEED TO CMMUNICATE WITH HER AND KNOW THW DRUGS SHE IS TAKING SO I CAN GET SOME FOR MY DAUGHTER. I ONLY KNOW OF FOLIC ACID AND BCOMPLEX ASIDE NICOSAN. IS THERE ANY OTHER? PLS DO LET ME KNOW. WE NEED TO STAY ALIVE TO ACCESS THIS CURE. THANKS

    • Dear Chinma,
      Thank you very much for your three messages and comments. I am very sorry to take so long to answer. We are a research foundation; and this is the first year in our 4 1/2-year existance that our research has received significant funding, thanks to the Bill & Melinda Gates Foundation. So, I have been spending most of my time in the lab. Our animal trials in mice got underway November 1, 2010. We hope to start clinical trials in humans with sickle cell within this year (2011). Thank you for your interest, and I wish you the very best with your very young daughter. Please keep in touch.
      Sincerely,
      Robert H. Broyles, PhD
      SCCF President

  3. WHEN WOULD YOU CAME TO ENGLAND TO OPEN YOUR CLINIC

  4. THANK U FOR WORKING SO HARD TO FIND THIS CURE FOR THE SCD IT BEEN SO HARD FOR ME AND MY FAMILY WE DID ARE DONATION 2 . WE LIVE IN ENGLAND WE WANT 2 KNOW WHEN YOU COMING TO OPEN YOUR CLINIC IN ENGLAND SO WE CAN SPREAD THE NEWS TO WHO NEED THE CURE. LET GOD BLESS U SEE U SOON.

    • Dear Irene,

      Thank you for your two messages and comments. We, the Sickle Cell Cure Foundation, are very fortunate to have received a grant from the Bill & Melinda Gates Foundation. We are working hard to be in a position to apply for and receive the next level of funding from the Gates Foundation because the additional funding will allow us to begin clinical trials for malaria and sickle cell including sites in England, France, Africa, India, and elsewhere.

      I am sorry to be so long in answering. I have been spending almost all of my time in the laboratory, working on the cure, which is where I should be, where I can do the most good.

      Thank you again for your message and your donation. Please, please keep us informed of your situation. We wish you the very best.

      Sincerely,
      Robert H. Broyles, PhD
      SCCF President.

  5. I am a SFC in the US Army and a new Advocate for Sickle Cell Trait and I am learning as much as I can about this Blood Disorder. It’s time to educate the people about SCD and SCT. I survived a Physical Exertion Illness or injury how ever you look at it, caused by the Sickle Cell Trait. My dedication is to the Awareness of this Blood Disorder. If people are aware of what can happen when two genes come together, they will be able to understand what can happen if a child is brought in this world. Not saying you can make babies but understanding the health issues is major. And for those who have the Trait like myself and are physically active and could die from exertion. The Trait can cause the body to have crisis just like the anemia can. Awareness could help us gain control of this blood disorder.

    SFC Dozier

    • Dear SFC Dozier,

      Thank you very, very much for relating your experience so that others can read and know. And thank you for your dedication to this cause. I am glad that you provide a link to your website http://www.wdconsctawareness.org. Please keep in touch. Thanks for your interest and support.

      Sincerely,
      Robert H. Broyles, PhD
      SCCF President

  6. Danielle Wilder says:

    I have a seven year old Daughter who was also Diagnosed at birth with Sickle Cell Disease. She is a happy otherwise healthy little girl. I am so happy that you are bringing awareness to this Disease. I myself knew nothing about it until I got pregnant. I sometimes feel respopnsibe for her condition. I was yound when I had her and didn’t know how important it was to make sure your partner doesn’t possibly have the trait too. This is something that peple need to be aware of early on. I thank you for the opportunity to speak briefly on it. if there is any information that comes up that may be helpful please let me know.

    • Dear Daniel,
      Thank you very much for sharing your experience. I forwarded your comments to J.R. Perry as well, since I know that you, he, and other parents with children with sickle cell have much in common. Please stay in touch.
      All the best,
      Robert H. Broyles, PhD
      President, SCCF

    • In the hospital now ..pain just got too OUCH! I think its hialrious when people tell me that my ulcer ain’t that bad. We all feel differently. Some people have high threshold of pain and others have low pain thresholds. I’m on the low side. And I can ONLY SPEAK 4 MYSELF when I say that this sickle cell ulcer is one of the WORST pain I’ve felt in a LONG TIME. Once again I SAY that FOR ME, this ulcer feels just as painful as a sickle cell crisis. Only just pain jammed up in my leg.

  7. emmanuel says:

    I just stumbled into this site and am amazed to learn that somewhere out there, somebody cares about this unfortunate little children who are subjected to pains every now and then. I could not help it but cry when I discovered that my 8 yr old daughter is sickle celled.
    Dear Dr Broyesr, may God give you that complete favor that will make you and your team come out with success in finding cure to SCD and put your names in the minds of millions that suffer from this blood disorder.
    I will look for a way to help spread this good news to others.

    Thank you.

    • Dear Emmanuel,
      Thank you so much for your message! I hope that your 8 year-old daughter is doing well and that you have access to good medical care for her. We will keep you posted on our progress.
      All the best,
      Robert H. Broyles, PhD
      SCCF President/Lead Scientist

  8. Angela Logan says:

    Thank you so much for trying to find a cure for this disease. We have just found out that our baby girl who is only 4 months old has sickle cell. i don’t know what is ahead but pray for strength to make it through. Once again thank you.

    • Dear Angela Logan,
      Thank you for your message. I hope your baby girl is doing well and that you have access to medical care.
      All the best,
      Robert H. Broyles, PhD
      SCCF President/Lead Scientist

  9. Hi doctor,

    unfortunately last night i came to know that my nephew is suffering from SCD please assist me some tips if she wants to get cure from this disease in case related to her Diet. what type of diet should she maintain. she is only 5 years old. Doctor was advising that she needs to change her blood in three months is it true my nephew live in india. i want your assistance.

    looking forward to hear from you.
    Regards
    Ahsan

  10. Arelettia Jones says:

    Bless you Dr B. I am a very close friend of Mr. J.R. Perry. I remember when James was born and JR told me right away that his son suffered from Sickle Cell. Thank you for making finding a cure your passion. I have had a least one family member die from Sick Cell. Please tell me if there is anyway I can help get the word out. Thank you God Bless

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