September Sickle Cell Awareness Event Scheduled

Oklahoma Sickle Cell Walk, September 17, 2016

Participate in the Walk, Run, Jog for a Sickle-Cell Cure, September 17, 2016

Plan ahead to participate in the Fall 2016 Sickle Cell Awareness event and SAVE MONEY!  The 5K Walk, Run, or Jog for a Cure annual event will be in Oklahoma City on Saturday, September 17, 2016.  If you preregister now, youth can participate for $15 and adults (18-years of age and older) for $20.  If your register prior to August 8th, you will receive a commemorative T-shirt.  The gathering begins 9:00 am on the South side of the State Capitol located at 2300 N. Lincoln Boulevard.  Save the date and plan to participate!  Register Now! Contact the Supporters of Families will Sickle Cell at 918-405-1468 for more information.

Comments

  1. Eydie Mae Davis says:

    I think this is awesome! This is my second year to participate, of course, I walk. I feel that it’s a great way to Remember my 1st born son & also to walk for a good cause in honor of my 1st granddaughter who has this dreadful disease. I am using my FaceBook page to motivate, encourage & enlighten others about the cause & the cure. KEEP UP THE GOOD WORK & MAY GOD CONTINUE TO BLESS YOU.

  2. Jonathon Scott says:

    Less than TWO WEEKS left to register. Make plans to attend this evening right away! Bring your family and friends.

  3. Mel Murdock says:

    My 26 year-old son just died from sickle cell disease in May of 2016 and liver failure and encephalopathy! He is no longer suffering but I still feel there were not a lot of options afforded to him in Oklahoma! By the time we learned he was terminal it was too late for any medical treatment. We were referred to Chicago for transplants and research programs. Children’s hospital in OKC was cutting edge, but once one has become an adult and is transferred to adult medical clinics… the education, support and care falls short. We were fighting an uphill battle. Once I started researching online I learned there really isn’t much funding for sickle cell research in this state like there is in the northern regions! Sickle cell does not take much precedence or warrant the latest greatest medical treatment. How sad and disheartening for the patient and patient’s family. God got the final say, and he decided to call my child home after years of suffering. To the medical community he was a statistic perhaps but he was his mother and father’s son! More awareness needs to take place. Sickle cell has a face, a name…. his name was Matthew.

    • Jonathon Scott says:

      We are so sorry for the loss of your son. You make important points about awareness, care options, funding, research, and support. We all wish for a better future and healing for the families.

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